Posts Tagged ‘Alzheimer’s Dementia’

Approach and Communication

Tuesday, June 22nd, 2010

As Alzheimer’s disease progresses, it can impact the way a person communicates. And we all know that communication is vital in the caregiving process. Alzheimer’s makes it difficult to express our ideas, feelings, and wants. In order to maintain a quality life, this basic need must be met.

Each person with Alzheimer’s disease is unique, as are each person’s communication abilities and deficits. An individual with Alzheimer’s may have trouble finding the right words, may misunderstand statements that are made, may repeat the same words or statements, or may revert to speaking a native tongue. As the disease progresses, caregivers may also see the person relying more on gestures than words. For example, it may be easier to point to an object such as a cup of water, than to ask for a drink. She may pat the sides of her waist to indicate she needs to go to the bathroom. Some people may have trouble speaking in cohesive statements, often with the phrases sounding more like “word salad”, an incomprehensible mixture of words or phrases. Consequently, caregivers must learn to rely on gestures and other forms of nonverbal communication in order to understand what the person is trying to communicate.

Despite the fact that communication may become more challenging as the disease progresses, sensitive ongoing communication is important. Although the person with Alzheimer’s may not respond to each statement, she still benefits from continued communication.

Here are some tips to enhance communication:

• Approach from the front and never from behind.
• Get eye-level and at a comfortable distance (at least 2 feet from face)
• Identify yourself by name (and/or role) and what you are going to do for/with the person. Even if you have known the person for years, it is still important to identify yourself and the task.
• Call the person by his/her familiar name.
• Use short, simple, one step instructions
• Give the person plenty of time to respond to questions and statements
• Limit available choices to two (2) for the person to decide from ( i.e. the blue dress or the red dress, a brownie or ice cream)
• Don’t ask questions that rely on memory (remember when you ate eggs for breakfast last week?).
• Speak in a strong clear voice; don’t yell unless the person has a hearing impairment.
• Don’t talk down or childlike.
• Turn negatives into positives. Say “Let’s go here” instead of “Don’t go in there.”
• Turn questions into statement. Say “Let’s go eat” instead of “Are you ready for lunch?”
• Be aware of your tone of voice. Convey an easy going attitude.
• Approach from the front and never from behind.
• Use positive, friendly facial expressions, even if you’re doing a difficult task.
• Be aware of your stance – avoid standing with hands on the hip or crossed arms.
• Focus on feelings not on facts.
• Validate feelings and help put those feelings into words.
• Be patient, flexible and understanding.
• If you cannot understand her, tell her, “I’m not sure what you’re trying to say, and we’ll come back to that later.”

Good communication will bolster self worth, validate feelings, stimulate memories, and calm and reassure.

Personally Meaningful Engagement Reduces Behaviors

Monday, May 18th, 2009

What would you say if someone was able to provide you with a tool that could bring purpose to your resident’s lives and job satisfaction to your caregivers?  This tool would be practically free of cost, easy to assemble, and occurs naturally in the environment.  There is such a tool:  activity programming.  Effective programming is the key to any successful long-term care program and to improving quality indicators in a drastic manner.

One of the biggest challenges facing long-term care centers is the “behaviors” challenge.  It is often those “behaviors” which begin prior to placement in our nursing homes that cause loved ones to admit family members.  Behaviors have a major impact on the quality indicators generated with each MDS.

One example is a gentleman we met who continually hit staff members and scared other residents in the Alzheimer’s center where he was residing.  Caregivers felt they could resolve the behavior by providing him with a structured routine, meeting unmet needs, and encouraging him to participate in activities throughout the day. What the staff didn’t understand, however, was that these particular activities were not part of his normal life prior to nursing home placement.  Also, unbeknownst to the staff, the gentleman had been through a traumatic event in his twenties and the darkness of his room caused him to become frightened each afternoon as the sun set.  The nursing staff, feeling they had no choice, requested anti-anxiety medication, an anti-psychotic and an anti-depressant.  The resident soon became very unsteady, slept many hours throughout the day, lost his appetite and began losing weight.  One set of problems was traded for another.  ADL care actually became more difficult.

After thoroughly interviewing the family, it was discovered that the gentleman had been severely beaten by a group of men in a dark alley after work one evening.  Better lightening was placed in his room so the dark shadows no longer existed.  The interview also uncovered that he previously had been involved in maintenance at his church. The maintenance director at the nursing facility was asked to create small opportunities for the gentleman to “do rounds” each day. His life now had some purpose!  Based upon interests in his earlier life, realistic activity kits such as a fishing kit, a tool kit, and a photography kit were developed.  He was occupied with personally meaningful activities daily and eventually all of his psyche meds were eliminated.

For more information call 317-218-5111 or www.alzcaregroup.com

Sensory Kit: Spiritual

Wednesday, April 1st, 2009

Approach and Communication

 

            As Alzheimer’s disease progresses it can impact the way a person may communicate.  Communication is vital in the care giving process.  It is the way we express our ideas, feelings, and wants.  In order to maintain a quality life, this basic need must be met.   

 

            An individual with Alzheimer’s may have trouble finding the right words, may misunderstand statements that are made, may repeat the same words or statements, or may revert to speaking a native tongue.  As the disease progress, caregivers may also see the person relying more on gestures than words.  For example, it may be easier to point to an object such as a cup of water, than to ask for a drink.  She may pat the sides of her waist to indicate she needs to go to the bathroom.  Some people may have trouble speaking in coherent statements where the phrases sound more like “word salad.”  Word salad is an incomprehensible mixture of incoherent words or phrases.    Caregivers must rely on gestures and other forms of nonverbal communication in order to understand what the person is trying to communicate.

 

            Despite the fact that communication may become more challenging as Alzheimer’s disease progresses, sensitive ongoing communication is important.  Although the person with Alzheimer’s may not respond to each statement, she still benefits from continued communication.

 

Tips to enhance communication:

 

·         Identify yourself by name and what you are going to do for/with the person. Even if you have known the person for years, it is still important to identify yourself and the task.

·         Call the person by his/her familiar name.

·         Use short, simple, one step instructions

·         Give the person plenty of time to respond to questions and statements

·         Limit available choices to two (2) for the person to decide from ( i.e. the blue dress or the red dress, a brownie or ice cream)

·         Don’t ask questions that rely on memory (remember when you ate eggs for breakfast last week?).

·         Speak in a strong clear voice; don’t yell unless the person has a hearing impairment.

·         Don’t talk down or childlike.

·         Turn negatives into positives. Say “Let’s go here” instead of “Don’t go in there.”

·         Turn questions into statement.  Say “Let’s go eat” instead of “Are you ready for lunch?”

·         Be aware of your tone of voice.  Convey an easy going attitude.

·         Approach from the front and never from behind.

·         Use positive, friendly facial expressions.

·         Be aware of your stance – avoid standing with hands on the hip or crossed arms.

·         Focus on feelings not on facts.

·         Validate feelings and help put those feelings into words.

·         Be patient, flexible and understanding.

 

 

            Good communication will bolster self worth, validate feelings, stimulate memories, and calm and reassure.

Spring Activity Ideas

Wednesday, February 25th, 2009

Spring is just around the corner! I’m ready for the end of cold weather, snow, and wind.  This is the perfect time to start your gardening projects for your residents.  Growing food that you later eat can be a rich and satisfying experience.  Gardening is a familiar activity many residents enjoy and take pride in doing.  And adding fresh vegetables to a meal promotes good health.

The purpose of this activity is to provide residents with an opportunity to perform a past skill or responsibility and to stimulate reminiscence and socialization.

 

Materials:  egg carton, garden gloves, seeds, dirt, watering can, spray bottle, cookie sheet

 

Set-up

Find an indoor space with good lighting for seedlings and create an outdoor space for gardening.

 

Process

Getting Started

  1. Decide what you will grow.  Ask the residents to help you choose what to plant.  Take time to reminisce and ask questions like,
    1. What vegetables did you grow from seeds?
    2. Where did you get your seeds?
    3. What vegetables did you grow from plants?
    4. What type of container did you start your plants in?

 

Seedlings

  1. Ask families to donate seeds or buy them at a nursery.
  2. Start seedlings at the beginning of spring.
  3. Give each resident an egg carton.  Next, tell them to punch a couple of small holes in the bottom for draining.
  4. Direct the residents to fill each egg holder halfway with dirt.  Next, tell them to add one seed to each egg holder.  Then, tell them to cover the seeds with dirt.
  5. Give the first resident the spray bottle filled with water.  Next, direct the residents to spray water on top of each egg holder.
  6. Place the egg cartons on the cookie sheet to catch any water that may drain out.  Next, follow the directions on the seed package to (1) decide where to put the cartons so the seeds will grow and (2) find out how often to water them.  Then, remind the residents in the coming weeks to water the seeds according to the directions.
  7. Consider asking questions from Garden Trivia

 Copyright 2008             Alzheimer’s Care Group 

For more information:   www.alzcaregroup.com

Brain Protein Could Halt Alzheimer’s

Wednesday, February 11th, 2009

I read this interesting article in McKnight’s Long Term Care and Assisted Living Newsletter yesterday.  It will be interesting to see how this research continues to develop.

 

Brain Protein Could Halt Alzheimer’s

The key to slowing, or even stopping, the progression of Alzheimer’s disease may lie in a naturally occurring protein produced by the brain, according to recent research.

Brain-derived neurotrophic factor (BDNF) is produced by the brain’s entorhinal cortex, which helps support memory. In patients with Alzheimer’s disease, researchers found that production of BDNF is significantly decreased. By injecting the protein into aged animals and animals bred to exhibit Alzheimer’s-like symptoms, scientists at the University of California, San Diego, were able to stimulate the brain’s memory circuits and prevent cell death caused by disease or brain damage.

The effects of the protein were “potent,” researchers said. The animals that received the treatment soon began producing more BDNF on their own, and researchers noted improved memory function and other long-term benefits. The treatment was deemed safe and effective in animal models, leading researchers to believe the treatment work similarly in humans. Their research was published in the Feb 8 issue of the journal Nature Medicine.

Daily Journals For Caregivers

Friday, January 2nd, 2009

I recently received a call from a daughter caring for her dad with Alzheimer’s.  Her challenge was communicating with the family physician about Dad’s care.  It seemed that each time Dad went to the doctor, he was able to answer the questions perfectly therefore the doctor didn’t think there was cause for concern.  What the doctor didn’t know however was that five minutes after leaving the office, Dad couldn’t remember that he’d even been to the doctor that day.  Care at home was becoming increasingly more difficult because the family was not able to get him to take a bath, his meds, or (at times) eat. 

            One of the best tools that families can utilities when preparing for any kind of visit to a physician is a daily journal.  In this journal, a care giver can keep track of all the important information that the physician will need to know.

            My family encountered this same situation when my grandfather began having challenges due to Alzheimer’s.  Providing the doctor a clear picture of what was occurring daily made it easier for him to prescribe medication and advise my grandfather.  When it came time to give up the keys to his truck, he did so willingly because the doctor advised it.  Had that bit of information come from his family he would have fought us.

 

The Alzheimer’s Association recommends the following list:

 

·        Any medications taken that day.  List any over the counter, prescribed, or herbal   remedies.

 

                                    -Medication name

                                    -Dosage

                                    -Time of day taken

 

·        Changes in:

 

                                    -Behavior

                                    -Memory

                                    -Personality

                                    -Activities of daily living (such as bathing, eating, dressing, etc.)

                                                How much assistance does the person with AD need to

                                                complete these tasks?

 

·        Activities the person with AD enjoyed that day and how much assistance was needed to complete these events.

 

·        Caregiving strategies that worked and those that did not. 

 

            Caregivers should also remember to note when they themselves are feeling overwhelmed in certain situations.  Asking for help in these situations should never be considered a failure and is encouraged in order to maintain the caregiver’s own health and well-being.

 

www.alzcaregroup.com

 

www.behomelivelife.com

Good People Taking Care of Good People

Thursday, November 6th, 2008

Good People Taking Care of Good People Means Good Business

 

“I’m only 42.  She’s only 67.  I thought Alzheimer’s was an old person’s disease.  My mother is driving me crazy…and I don’t want to say that out loud.  It’s not her fault.  For so many years, she’s been my rock, my role model, my confidant.  But not anymore.  I’m her rock, and my father’s, and my sister’s, and my brother’s, too.  And my kids are so busy in high school.  My husband, God bless him, tries so hard to keep us sane.  Some weeks it’s a zoo around here.  I really don’t know how we’re maintaining.  We just keep plugging away, but can anyone really survive doing this for very long? …”

 

This was the first few minutes of a very long phone call I received at 9 pm the other night. She needed to vent and I needed to provide some “just right” answers.

 

This is the quality of life experienced by many of the so-called “sandwiched” generation, raising their own families and simultaneously caring for aging parents.  They are trying to be SuperMoms and SuperDaughters; SuperDads and SuperSons.  Working all day, taking care of their own children (and maybe even grandchildren), and then coming home at night to start their second job taking care of their parents.  They do so gladly and respectfully, yet with great burden.

 

And it’s not just the “busy-ness” of caregiving that is burdensome.  Caregivers of persons with Alzheimer’s disease and other dementias shoulder a particularly heavy burden of care.   The real burden is the mental stress and the anguish of watching a parent slowly lose his or her mind.  While only one person is diagnosed with the disease, dementia impacts each and every family member for a very long time.

 

These same sons and daughters are the ones calling in late to work because there’s a crisis at home, leaving at lunch time to make sure their parent and the house is safe, and occasionally leaving work early to take Mom to the doctor or to run errands.  Nearly one-fifth of all workers are caregivers.  67% of working caregivers report that they miss work because of their caregiving responsibilities.  In fact, 27% of all unscheduled absences are due to family issues.  Twenty seven percent.

 

Multiply that 27% by the number of Baby Boomers hitting the prime ages of either caring for an aging parent with dementia, or being diagnosed with dementia themselves.  The Baby Boomers were born between 1946 and 1964, making them 62 to 44 years of age.  At 62, 10% will be diagnosed with dementia. 

 

Our workforces and their families are burdened and in need of relief.  The primary caregiver for a person with dementia is generally (but not always) a daughter, 45 to 55 years of age, whose siblings live seven hours apart.  One in four of you reading this has already been impacted by dementia in your families and close associations, yet our companies may offer little beyond a referral source. 

 

How can you and your business or business organization be a catalyst for relief?

 

 

It starts by identifying your colleagues, employees, friends, relatives, and neighbors who are fading under the heavy burden of caring for an aging parent with dementia.  Often, they won’t complain, but you can see it in their eyes and hear it in their voices when you simply ask, “How’s your family?”

 

Offer flexibility in work hours and workplaces to employees who demonstrate responsibility in accessing that option.

 

Implement a decision support service, run by a professional provider network, which tailors “just in time” solutions for individual employees and their families, including

  • Individualized relief plans for the employee, his/her family, and aging relative based upon a thorough assessment
  • Training for caregivers and supervisors
  • Consultation on stress relief and healthy stress management practices
  • Training and consultation in managing the crises and complexities of the disease issues
  • Organization of community-wide partners for relief
  • Education of those partners about the struggles of families facing Alzheimer’s and related dementias

 

Activate the responsible network 24 hours a day, 7 days a week.  Family crises do not usually happen at 2 pm on a Tuesday; they happen at 9 pm on Thursdays and 3 am on Saturdays and 11 pm on Sundays.  The network is of no service if it is unavailable when needed. 

 

And here’s the really important step – the culture of the workplace must support the services, benefits, and policies that are in place in order to be fully accessible to those in need.

 

Anyway you look at it, good people taking care of good people is good business.

Written by Ellen Dunnigan

CEO Alzheimer’s Care Group/Sollievo

www.alzcaregroup.com        www.mysollievo.com