Posts Tagged ‘alzheimer’s support’

Approach and Communication

Tuesday, June 22nd, 2010

As Alzheimer’s disease progresses, it can impact the way a person communicates. And we all know that communication is vital in the caregiving process. Alzheimer’s makes it difficult to express our ideas, feelings, and wants. In order to maintain a quality life, this basic need must be met.

Each person with Alzheimer’s disease is unique, as are each person’s communication abilities and deficits. An individual with Alzheimer’s may have trouble finding the right words, may misunderstand statements that are made, may repeat the same words or statements, or may revert to speaking a native tongue. As the disease progresses, caregivers may also see the person relying more on gestures than words. For example, it may be easier to point to an object such as a cup of water, than to ask for a drink. She may pat the sides of her waist to indicate she needs to go to the bathroom. Some people may have trouble speaking in cohesive statements, often with the phrases sounding more like “word salad”, an incomprehensible mixture of words or phrases. Consequently, caregivers must learn to rely on gestures and other forms of nonverbal communication in order to understand what the person is trying to communicate.

Despite the fact that communication may become more challenging as the disease progresses, sensitive ongoing communication is important. Although the person with Alzheimer’s may not respond to each statement, she still benefits from continued communication.

Here are some tips to enhance communication:

• Approach from the front and never from behind.
• Get eye-level and at a comfortable distance (at least 2 feet from face)
• Identify yourself by name (and/or role) and what you are going to do for/with the person. Even if you have known the person for years, it is still important to identify yourself and the task.
• Call the person by his/her familiar name.
• Use short, simple, one step instructions
• Give the person plenty of time to respond to questions and statements
• Limit available choices to two (2) for the person to decide from ( i.e. the blue dress or the red dress, a brownie or ice cream)
• Don’t ask questions that rely on memory (remember when you ate eggs for breakfast last week?).
• Speak in a strong clear voice; don’t yell unless the person has a hearing impairment.
• Don’t talk down or childlike.
• Turn negatives into positives. Say “Let’s go here” instead of “Don’t go in there.”
• Turn questions into statement. Say “Let’s go eat” instead of “Are you ready for lunch?”
• Be aware of your tone of voice. Convey an easy going attitude.
• Approach from the front and never from behind.
• Use positive, friendly facial expressions, even if you’re doing a difficult task.
• Be aware of your stance – avoid standing with hands on the hip or crossed arms.
• Focus on feelings not on facts.
• Validate feelings and help put those feelings into words.
• Be patient, flexible and understanding.
• If you cannot understand her, tell her, “I’m not sure what you’re trying to say, and we’ll come back to that later.”

Good communication will bolster self worth, validate feelings, stimulate memories, and calm and reassure.

Project Lifesaver

Friday, May 14th, 2010

Project Lifesaver Locates Your Loved One

Project Lifesaver is a network of first responders who combine the power of simple, effective tracking technologies with proven search and rescue techniques to find your loved one safely and quickly, should they wander. The first responders are located in most police departments.

Don’t let another day go by without enrolling your family member diagnosed with Alzheimer’s or a related dementia, especially if you are concerned that they may wander or drive unaccompanied by another person.  For a limited time, up to 1,800 families may enroll in the Family Stipends program at no cost, thanks to a grant from the U.S. Bureau of Justice Assistance.

Follow us on Twitter @AlzheimersInfo

Protect your family member who wanders or shouldn’t drive: To enroll in Project Lifesaver, click on the link below.

http://tiny.cc/zg9fb

Dog Day of Summer

Saturday, August 29th, 2009

Those dog days of summer are quickly approaching.  As the temperature rises, many residents in nursing homes can easily become dehydrated.  Here are some quick tips to make hydration a fun time for all care partners!

 

·         Ice Pops make a cool treat to enjoy especially during those times everyone is outside on the courtyard enjoying the sun.

·         Watermelon can be a tasty treat as well a fantastic way to add hydration to the afternoon.  Seed spitting contest are an added plus!

·         Smoothies:  these treats are easy to make.  Just take a blender of ice and a fruit of choice and blend away.  Fruit juice can be substituted for the fruit as well.

 

For more information contact 317-218-5111 or www.behomelivelife.com.

 

 

To Help or Not to Help: Personal Care

Sunday, August 2nd, 2009

To Help or Not to Help:   Personal Care

 

Self care activities (such as dressing and grooming) are not just tasks that have to be done in order to remain physically alive.  They are opportunities caregivers have to help individuals with Alzheimer’s disease maintain their physical, mental, communication, and social skills, as well as their dignity and self-respect.  Using effective approaches to these activities can help enhance an individual’s overall well-being for as long as possible.

 

Encourage the person to do as much as possible for him/herself.  If the resident can comb his/her hair, allow him to do so while you make the bed or complete another quick task.  You may need to finish (such as combing the back of the head) but it strengthens self care independence while maintaining individual identity and self-esteem.

 

Guidelines for Helping with Daily Self-care Tasks

  • Simplify and clarify the task.  Clothing garments with simple fasteners or a permed hairstyle any go far in enabling the person to complete a task independently.  Clarify the task with environmental cues such as a comb and brush set out by the makeup mirror.
  • Reduce distractions such as background noise to confusing cues (such as clutter or similarly colored toilet and dressing stool covers.)
  • Keep a regular routine.  A regular routine makes life more predictable and easier to cope with.  This reduces confusion and improves the individual’s cooperation and ability to perform self-care.
  • Be flexible and patient.  It is important to remain flexible and patient because the first attempt at getting a task done often will not work.  Also, remember to not take refusals personally, the person with Alzheimer’s disease cannot help his/her behavior.
  • Use good communication techniques.

 

Techniques for Helping

  • Break the task into steps that are small enough to match the person’s abilities.  For example, a person may need to have tasks broken into smaller steps such as:  put toothpaste on the toothbrush, brush your teeth, rinse your mouth, and dry off your mouth.
  • Demonstrate the step.  For example, when you say “wipe your mouth” you can wipe your own mouth.
  • Help begin the action.  Even when you demonstrate a step, the person may still not be sure what to do.  You can help by beginning the action until he/she remembers what to do.
  • Give the person time to finish the step.  Rushing a person with Alzheimer’s disease usually will increase confusion, embarrassment, and resistance.

 

For more information contact 317-218-5111 or www.behomelivelife.com

The Alzheimer’s Action Plan

Friday, July 17th, 2009

P. Murali Doraiswamy, head of biological psychiatry at Duke University, wrote The Alzheimer’s Action Plan to illustrate the irrefutable links between healthy living and a healthy brain.  Doraiswamy admits there is no perfectly effective method of Alzheimer’s prevention, but his book illustrates a pragmatic approach, encouraging readers to create a personal “brain health action plan” based on recognizing and managing personal risks. 

Caregivers who have dealt with loved ones with the disease will insist that Alzheimer’s is not a normal part of aging.  Studies agree, showing that distinct physical abnormalities, (such as tangles or plaques), appear in the brain.  Doraiswamy points out that while a cure still hasn’t been discovered, the disease is treatable.  There are currently 4 FDA-approved medications available and myriad more in clinical trials awaiting approval.

Amyloid PET scans, currently in the late stages of testing, are believed to be able to show plaque buildup in people even before they develop symptoms.  Genetic therapies are being developed to aid the brain’s ability to repair itself by delivering nerve growth factor through viral vectors, as some genetic mutations can be made possible by introducing a virus with the desired genetic material in vivo or in vitro.

With new developments in technology advancing early diagnosis and allowing people to see their personal risks, Doraiswamy believes people will have even more initiative to apply the proposals given in his book. 

Socialization Important For Memory

Tuesday, June 23rd, 2009

This article discusses recent findings regarding socialization and it’s affects on Alzheimer’s and other related dementias.  Interestingly, more and more research is proving socialization is vital to conserving cognitive function as we age.  It is a reminder in the value of staying connected with others.

 

Study links seniors’ loneliness to higher risk of dementia

 

By Kathleen Fackelmann, USA TODAY

Loneliness may put people at risk of an Alzheimer’s-like dementia, a study reported Monday.

“People who described themselves as lonely were twice as likely to develop dementia,” says researcher Robert Wilson of the Rush University Medical Center in Chicago.

Other studies have found that people who are unmarried and socially isolated are at higher risk for dementia, including Alzheimer’s. But this study is one of the first to show a link between loneliness — or the feelings of disconnection from other people — and a higher risk of developing dementia late in life, says Laurel Coleman, a spokeswoman for the Alzheimer’s Association and a geriatrician in Portland, Maine.

Wilson and his colleagues studied 823 people who were about 80 years old and had no sign of dementia at the start of the study. The team gave the recruits a loneliness quiz and tested them annually for signs of memory loss and confusion, two key signs of dementia and Alzheimer’s.

During the four-year study, 76 people developed an Alzheimer’s-like dementia, Wilson says. The risk of developing dementia increased about 51% for each one-point increase on the loneliness scale. People with the highest scores had 2.1 times the risk of developing dementia, a group of conditions that destroy brain cells and lead to mental confusion. Alzheimer’s is the most common form of dementia.

Autopsies were performed on 90 people who died during the study. The researchers found no link between loneliness and the development of the abnormal brain deposits that are the hallmark of Alzheimer’s.

That finding suggests loneliness might be triggering dementia through a novel mechanism — one that doesn’t lead to a brain riddled with deposits, Wilson says.

One theory is that people who are lonely over long periods of time might have higher levels of damaging stress hormones. The elevated stress hormones might lead to an accelerated aging of the brain — and perhaps to dementia, Wilson says.

Other research suggests lonely people are at risk of other health problems such as cancer and high blood pressure, says John Cacioppo of the University of Chicago. Still, he says, the new finding, which appears in February’s Archives of General Psychiatry, must be verified by additional research.

The findings didn’t change much when the team factored in markers of social isolation, such as infrequent participation in social events. That means that people who have a small number of good friends might be better off than those with a busy social schedule but chronic feelings of loneliness, Wilson says.

But lonely people often benefit from signing up for a new class or activity, Coleman says. Research shows that such activities might protect aging brain cells. And seniors who are out and about are more likely to make new friends, which might lessen feelings of loneliness, she says.

For more information contact 317-218-5111   or www.behomelivelife.com.

Call to Action

Monday, April 13th, 2009

CALL TO ACTION

 

I received this information today in the Alzheimer’s Association’s ENewsletter.  Please join all caregivers to make a difference in the lives of those who are battling this difficult disease.

 

 

Advocate Impact: Forum 2009 

Last month, over 600 advocates from around the country marched on Capitol Hill to demand that our lawmakers make Alzheimer’s a national priority.

During meetings with advocates, members of Congress made the following commitments:

*       188 indicated support to end the two-year waiting period for Medicare;

*       181 indicated support for a $250 million increase in Alzheimer research funding; and

*       83 indicated support the creation of an Alzheimer’s Solutions Project Office.

*       65 members indicated support for all 3 issues!

You can catch a glimpse of the action at: http://www.alz.org/forum

We have great momentum and now is the time to “seal the deal”. Read on…

What Can I Do Now?

Ask your members to co-sponsor the End the Medicare Two-year Wait Bill!
People under age 65 with dementia who lose their jobs are likely to lose job-related health insurance. Many become uninsured and uninsurable. Just when they need coverage the most, federal law requires them to wait two years to become eligible for Medicare. Because of this wait, families face soaring out-of-pocket costs for health care or completely forego care. http://alz.kintera.org/endthewait 

Email your members of Congress now. Ask them to co-sponsor the Ending the Medicare Disability Waiting Period Act of 2009 (S.700 / H.R.1708).

Go to:

For more information on how you can impact the lives of those with Alzheimer’s contact www.alzcaregroup.com or 317-218-5113

Sensory Kit: Spiritual

Wednesday, April 1st, 2009

Approach and Communication

 

            As Alzheimer’s disease progresses it can impact the way a person may communicate.  Communication is vital in the care giving process.  It is the way we express our ideas, feelings, and wants.  In order to maintain a quality life, this basic need must be met.   

 

            An individual with Alzheimer’s may have trouble finding the right words, may misunderstand statements that are made, may repeat the same words or statements, or may revert to speaking a native tongue.  As the disease progress, caregivers may also see the person relying more on gestures than words.  For example, it may be easier to point to an object such as a cup of water, than to ask for a drink.  She may pat the sides of her waist to indicate she needs to go to the bathroom.  Some people may have trouble speaking in coherent statements where the phrases sound more like “word salad.”  Word salad is an incomprehensible mixture of incoherent words or phrases.    Caregivers must rely on gestures and other forms of nonverbal communication in order to understand what the person is trying to communicate.

 

            Despite the fact that communication may become more challenging as Alzheimer’s disease progresses, sensitive ongoing communication is important.  Although the person with Alzheimer’s may not respond to each statement, she still benefits from continued communication.

 

Tips to enhance communication:

 

·         Identify yourself by name and what you are going to do for/with the person. Even if you have known the person for years, it is still important to identify yourself and the task.

·         Call the person by his/her familiar name.

·         Use short, simple, one step instructions

·         Give the person plenty of time to respond to questions and statements

·         Limit available choices to two (2) for the person to decide from ( i.e. the blue dress or the red dress, a brownie or ice cream)

·         Don’t ask questions that rely on memory (remember when you ate eggs for breakfast last week?).

·         Speak in a strong clear voice; don’t yell unless the person has a hearing impairment.

·         Don’t talk down or childlike.

·         Turn negatives into positives. Say “Let’s go here” instead of “Don’t go in there.”

·         Turn questions into statement.  Say “Let’s go eat” instead of “Are you ready for lunch?”

·         Be aware of your tone of voice.  Convey an easy going attitude.

·         Approach from the front and never from behind.

·         Use positive, friendly facial expressions.

·         Be aware of your stance – avoid standing with hands on the hip or crossed arms.

·         Focus on feelings not on facts.

·         Validate feelings and help put those feelings into words.

·         Be patient, flexible and understanding.

 

 

            Good communication will bolster self worth, validate feelings, stimulate memories, and calm and reassure.

Approach and Communication

Tuesday, March 31st, 2009

Approach and Communication

 

            As Alzheimer’s disease progresses it can impact the way a person may communicate.  Communication is vital in the care giving process.  It is the way we express our ideas, feelings, and wants.  In order to maintain a quality life, this basic need must be met.   

 

            An individual with Alzheimer’s may have trouble finding the right words, may misunderstand statements that are made, may repeat the same words or statements, or may revert to speaking a native tongue.  As the disease progress, caregivers may also see the person relying more on gestures than words.  For example, it may be easier to point to an object such as a cup of water, than to ask for a drink.  She may pat the sides of her waist to indicate she needs to go to the bathroom.  Some people may have trouble speaking in coherent statements where the phrases sound more like “word salad.”  Word salad is an incomprehensible mixture of incoherent words or phrases.    Caregivers must rely on gestures and other forms of nonverbal communication in order to understand what the person is trying to communicate.

 

            Despite the fact that communication may become more challenging as Alzheimer’s disease progresses, sensitive ongoing communication is important.  Although the person with Alzheimer’s may not respond to each statement, she still benefits from continued communication.

 

Tips to enhance communication:

 

·         Identify yourself by name and what you are going to do for/with the person. Even if you have known the person for years, it is still important to identify yourself and the task.

·         Call the person by his/her familiar name.

·         Use short, simple, one step instructions

·         Give the person plenty of time to respond to questions and statements

·         Limit available choices to two (2) for the person to decide from ( i.e. the blue dress or the red dress, a brownie or ice cream)

·         Don’t ask questions that rely on memory (remember when you ate eggs for breakfast last week?).

·         Speak in a strong clear voice; don’t yell unless the person has a hearing impairment.

·         Don’t talk down or childlike.

·         Turn negatives into positives. Say “Let’s go here” instead of “Don’t go in there.”

·         Turn questions into statement.  Say “Let’s go eat” instead of “Are you ready for lunch?”

·         Be aware of your tone of voice.  Convey an easy going attitude.

·         Approach from the front and never from behind.

·         Use positive, friendly facial expressions.

·         Be aware of your stance – avoid standing with hands on the hip or crossed arms.

·         Focus on feelings not on facts.

·         Validate feelings and help put those feelings into words.

·         Be patient, flexible and understanding.

 

 

            Good communication will bolster self worth, validate feelings, stimulate memories, and calm and reassure.

Alzheimer’s in the News

Monday, March 30th, 2009

This week in the news, the Alzheimer’s Association released its Facts and Figures 2009.  According to the Alzheimer’s Association 5.3 Million Americans have Alzheimer’s disease and the direct and indirect cost to the nation is $148 billion dollars annually.  Additionally, Newt Gingrich presented The National Alzheimer’s Strategic Plan for improving the care of those with Alzheimer’s disease and other related dementia to Congress.

What are you going to do to make a difference in the lives of those with Alzheimer’s and their caregivers? 

So often we become stuck in the mindset that people with dementia have no hope.  The media often reports the stories of heart ache and despair, but we never hear the heroic stories of people making a difference for others being afflicted with this devastating disease.

Who are those heroes?

·         Families who continue to make life the life of the loved one valuable even when that means adapting past interests to current abilities

·         Families who continue to visit their loved one even when it appears she doesn’t remember them any longer

·         Family members who regularly rotate care and responsibility to ensure the primary caregiver receives some respite

·         Caregivers in long term care who engage their residents in dementia with personally meaningful activities

·         Caregivers who provide care despite  Congress cutting Medicare/Medicaid benefits

·         Owners of nursing homes who put Person Centered Care before the dollar

·         Innovators who continue to find new ways to bring quality of life to some who can no longer remember

Are you making a difference?  Do you know where to begin? 

For more information:  Call 317-218-5111 or www.alzcaregroup.com